I love how people assume as soon as you have a disability that you are stupid. It gets me EVERY time! As soon as you tell someone you are hearing impaired, they start talking real LOUD and real SLOW! I get they are trying to help. Sometimes I laugh because they look stupid.
It's the ones who look at you like your stupid and whisper behind your back. Dummy I can read lips!
One incident that I can't erase from my head is when we first moved to Walla Walla. We were at Starbucks and I was looking at what I wanted to order. I had my hair up and you could see my hearing aid. My oldest was standing at the counter and the women working asked her if she could ask me what I wanted to order. I went up to place the older myself and her face turned bright red. She responded "I didn't know deaf people could talk!?!" Seriously!
Goes back to that one saying "You shouldn't judge a book by it's cover..."
Monday, January 16, 2012
2 Black Toes
If you look at G's toes, she has one that's black.
If you look at H's toes, she also has one that's black.
Yup, mama given them both black toes. Not on purpose of course. I've either stepped on them, shut the door on them, dropped something on them, or whatever else you can think!
A has learned to stay away from me! The other two just still haven't learned yet to not hide behind mama or under her.
If you look at H's toes, she also has one that's black.
Yup, mama given them both black toes. Not on purpose of course. I've either stepped on them, shut the door on them, dropped something on them, or whatever else you can think!
A has learned to stay away from me! The other two just still haven't learned yet to not hide behind mama or under her.
Thursday, January 12, 2012
Fight, Fall and Laugh
Dave and I were talking (or yelling) about something. He wasn't really listening to me since he knew the whole discussion was pointless. So I said what I had to say and was going to walk (run) away since I wanted the last word.
Fail.
I turned around forgetting and not seeing the stairs were behind me. Yup, you guess it. Fell FLAT on my face.
Fail.
Since I was in a hurry even more because I was so MAD at myself for forgetting the stairs. I fell again.
All I could do is turn around and see that my lovely husband was trying to be caring but was laughing.
Priceless = fight was forgotten and we were laughing.
Sometimes you gotta laugh at yourself. I guess it was God's way of saying joke on you - thought you were going to get the last word ;)
Fail.
I turned around forgetting and not seeing the stairs were behind me. Yup, you guess it. Fell FLAT on my face.
Fail.
Since I was in a hurry even more because I was so MAD at myself for forgetting the stairs. I fell again.
All I could do is turn around and see that my lovely husband was trying to be caring but was laughing.
Priceless = fight was forgotten and we were laughing.
Sometimes you gotta laugh at yourself. I guess it was God's way of saying joke on you - thought you were going to get the last word ;)
Wednesday, January 11, 2012
Usher and Me - sorry so long!
No I am not dating Usher! (Gross btw!)
What is Usher Syndrome and how did we find out that I have Usher (and my brother too)
Going back July 2008.
It was late about 10pm and I was getting ready to head to a friend of mine house to get ready for our garage sale we were having the next day. (yes 10pm - we have 2-3 kids so night time worked better for us). I was driving down my street which was a dark dirt road with a party store at the end of it (for you that live out West a party store is a liquor, beer and food store). I saw a TALL SKINNY White Male running out of the store. He was wearing cut off jean shorts and a white t-shirt that was cut off at the selves. He was waving his arm and running in my direction. Umm I wasn't stopping for all I knew he had killed someone in that store. Yes I was being judgemental (sorry!). Then I saw a cop jump in front of me car so then of course I stopped.
She came to my car and right off bat her and I didn't hit off too well :/ She wanted to know why I didn't stop for the said male mention above (who later I found out was a cop that was called in while he was at home - might want to change your outfit buddy!). So I explain same line above. She wasn't buying it but she was going to give me a chance. She explain a tree had fallen down at the end of the street after her telling me I saw it but before that I don't know if I didn't see it because of the SKINNY cut off jean man running towards me or because what we later found out that I have a blindness condition called Usher Syndrome.
Anyways, she had asked me to back up towards me house (ya right that was like 5 houses down!). Well I don't do back up in cars - not during the day and not during the night unless it's in a parking lot and even then I don't like backing up!! I told her I can't back up. I don't have my hearing aid in. She ask what that had to do with anything. I told her that I rely on my hearing for balance and for some reason I needed balance to back up - LOL!! Just wait it gets better! She asked "Where is your aid then?" I knew right off back she wasn't going to buy this story. I replied "Dog ate it." Of course that open a can of worms for her, my car got search and question since I had my for sale items in it. Long story short - my wonderful husband had to leave our 2 sleeping baby in the house to walk down to get me and the car. Left with no ticket but just a nice well mean warning from the cop.
September 2008...
I get a letter in the mail reading "You have been suspended from driving till further notice. We find that you may have an eye condition that is holding you back from driving. You are to have a vision test...blah blah blah..." Of course I went right into Anger Management Mode but I knew I could see and I knew I would pass my vision test so what is there to get so upset about, right?
Doc Number 1 - You have something that I know isn't right with your eyes you need to see someone else. Doc Number 2 - yup you have Usher, you will lose all your vision soon, I won't sign for you to drive and good luck! Doc Number 3 - you can drive, you just need glasses. Doc Number 4 - yes you have Usher, NO you most likely won't lose all your vision, yes you can drive for the time being, and we will find a cure soon!
What Is Usher Syndrome?
Usher syndrome is the most common condition that affects both hearing and vision. A syndrome is a disease or disorder that has more than one feature or symptom. The major symptoms of Usher syndrome are hearing loss and an eye disorder called retinitis pigmentosa, or RP. Retinitis pigmentosa causes night-blindness and a loss of peripheral vision (side vision) through the progressive degeneration of the retina. The retina is a light-sensitive tissue at the back of the eye and is crucial for vision. As retinitis pigmentosa progresses, the field of vision narrows, a condition known as “tunnel vision,” until only central vision (the ability to see straight ahead) remains. Many people with Usher syndrome also have severe balance problems.
There are three clinical types of Usher syndrome: type 1, type 2, and type 3. In the United States, types 1 and 2 are the most common types. Together, they account for approximately 90-95 percent of all cases of children who have Usher syndrome.
to read more about what is Usher please go here:
http://www.ushersyndrome.nih.gov/whatis/fulltext.html
*note to reader this blog is not for you to feel sorry for us but to laugh along with us and to reach out and teach to those that have no clue what is really going on with us, not even sure I know what is going on with us ;) *
What is Usher Syndrome and how did we find out that I have Usher (and my brother too)
Going back July 2008.
It was late about 10pm and I was getting ready to head to a friend of mine house to get ready for our garage sale we were having the next day. (yes 10pm - we have 2-3 kids so night time worked better for us). I was driving down my street which was a dark dirt road with a party store at the end of it (for you that live out West a party store is a liquor, beer and food store). I saw a TALL SKINNY White Male running out of the store. He was wearing cut off jean shorts and a white t-shirt that was cut off at the selves. He was waving his arm and running in my direction. Umm I wasn't stopping for all I knew he had killed someone in that store. Yes I was being judgemental (sorry!). Then I saw a cop jump in front of me car so then of course I stopped.
She came to my car and right off bat her and I didn't hit off too well :/ She wanted to know why I didn't stop for the said male mention above (who later I found out was a cop that was called in while he was at home - might want to change your outfit buddy!). So I explain same line above. She wasn't buying it but she was going to give me a chance. She explain a tree had fallen down at the end of the street after her telling me I saw it but before that I don't know if I didn't see it because of the SKINNY cut off jean man running towards me or because what we later found out that I have a blindness condition called Usher Syndrome.
Anyways, she had asked me to back up towards me house (ya right that was like 5 houses down!). Well I don't do back up in cars - not during the day and not during the night unless it's in a parking lot and even then I don't like backing up!! I told her I can't back up. I don't have my hearing aid in. She ask what that had to do with anything. I told her that I rely on my hearing for balance and for some reason I needed balance to back up - LOL!! Just wait it gets better! She asked "Where is your aid then?" I knew right off back she wasn't going to buy this story. I replied "Dog ate it." Of course that open a can of worms for her, my car got search and question since I had my for sale items in it. Long story short - my wonderful husband had to leave our 2 sleeping baby in the house to walk down to get me and the car. Left with no ticket but just a nice well mean warning from the cop.
September 2008...
I get a letter in the mail reading "You have been suspended from driving till further notice. We find that you may have an eye condition that is holding you back from driving. You are to have a vision test...blah blah blah..." Of course I went right into Anger Management Mode but I knew I could see and I knew I would pass my vision test so what is there to get so upset about, right?
Doc Number 1 - You have something that I know isn't right with your eyes you need to see someone else. Doc Number 2 - yup you have Usher, you will lose all your vision soon, I won't sign for you to drive and good luck! Doc Number 3 - you can drive, you just need glasses. Doc Number 4 - yes you have Usher, NO you most likely won't lose all your vision, yes you can drive for the time being, and we will find a cure soon!
What Is Usher Syndrome?
Usher syndrome is the most common condition that affects both hearing and vision. A syndrome is a disease or disorder that has more than one feature or symptom. The major symptoms of Usher syndrome are hearing loss and an eye disorder called retinitis pigmentosa, or RP. Retinitis pigmentosa causes night-blindness and a loss of peripheral vision (side vision) through the progressive degeneration of the retina. The retina is a light-sensitive tissue at the back of the eye and is crucial for vision. As retinitis pigmentosa progresses, the field of vision narrows, a condition known as “tunnel vision,” until only central vision (the ability to see straight ahead) remains. Many people with Usher syndrome also have severe balance problems.
There are three clinical types of Usher syndrome: type 1, type 2, and type 3. In the United States, types 1 and 2 are the most common types. Together, they account for approximately 90-95 percent of all cases of children who have Usher syndrome.
to read more about what is Usher please go here:
http://www.ushersyndrome.nih.gov/whatis/fulltext.html
*note to reader this blog is not for you to feel sorry for us but to laugh along with us and to reach out and teach to those that have no clue what is really going on with us, not even sure I know what is going on with us ;) *
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